Post Polio Syndrome

 
   


At the age of four, I was taken ill with bulbar Polio. With the loving care given me by my parents, I am one of the few survivors of this type of Polio who has retained my voice (and according to some, I never shut up).

I am discovering, as I approach my senior years, that 'the Dragon' has returned. I struggle every day with the physical and emotional pain of Post Polio Syndrome, an evil phenomenon that has invaded my life. My joints and muscles ache for no real reason, and I tire easily.  In return for the joy I had with my Morgan horses for over 25 years, I am a Healing Touch for Animals Practitioner. This serves to aid dogs and horses in pain, which also works to relieve my discomforts.

I don't consider my self disabled, and am in awe of those who can achieve so much against impossible odds. I will be adding links on this page to sites that give helpful information to those of us 'fighting the Dragon once more'.

Korky

Member and supporter of the North Central Post Polio Support Group.

 


Many of the following websites and links were provided by members of the PPS list - an extended family who understand.

Dr. Bruno's New Mobility

The lists are complimentary and each has a different focus. I've attempted to describe that focus with a short description here. You're urged to read the more descriptive information below and actually try out one or more of the lists to get a better idea of what each list is like.

polio-life@eskimo.com - 'Few holds barred' discussion.
post-polio@egroups.com - "A laid-back low-key, no-beefs list"
polio-groups@makelist.com - Support group information exchange.
pps-cg@makelist.com - For PPS caregivers.
poliontario@eGroups.com - A set of (intentionally) small lists.
subpara-pps@egroups.com - 'A forum for those with "sub-paralytic" polio now suffering PPS'

www.innovativemobility.com Innovative Mobility & More. We lead the way in personal mobility products that help you enjoy the active lifestyle you deserve. Our products for home and health (lift chairs, power chairs, diabetic and prothombin testing supplies), for transportation (van conversions, ramps and lifts) or everyday activities (indoor and outdoor scooters, walkers, canes) all focus on one goal: Meeting your personal mobility needs. Our prices are lower than anywhere else. Guaranteed.
www.blvd.com/axess Offering: Unique carrying system the attaches in seconds to the frame of a wheelchair, Rain Poncho Custom designed for wheelchair or scooter users, Walker Accessory Bar Expandable Accessory Bar easily attaches to walkers, Drink Holder Easily attaches to all Wheelchairs or Walkers and Personal Wipes Warmer. Buy on-Line
www.oneforallbra.com Get dressed without the added humiliation of the ripping sound of Velcro fasteners. As far as your undergarments, ladies, a solution has been found. Although not designed especially for you, we've realized that this bra will work for you.
www.wheelsource.com WheelSource is a mail order company featuring carrying solutions for wheelchairs, walkers & crutches from the Advantage Bag Company(tm) of Torrance, CA. Owned and operated by polio survivor and wheelchair user, Jim Hood of Hood & Associates, WheelSource has been a supplier of Advantage Bags since 1989.
www.finallyitfits.com FINALLY IT FITS clothing will help to restore independence. It is designed for easy dressing. It looks "off the rack" while providing Velcro(r)closures.
www.adaptiveapparel.com Mens and Womens clothing line offering: Dresses, Sweaters, Footwear, Slips, Sleepwear, Robes and ponchos, undergarments ans specialty items.
www.wheelchairjeans.com Jeans for Men and Women in Wheelchairs Designed to be safer and more comfortable. Our goal is to provide you with the best possible fitting Jeans and Slacks.
www.blvd.com/pushease Push Ease's offers a choice of Full-finger and half-finger gloves with gel-padded leather palms for protection and cushioning. Palms cuffs are also available for quadraplegic use.
www.blvd.com/rolli-moden Clothing designed especially to meet the needs of persons in a sitting position. Whether you're looking for jeans, casuals, suits, or shorts
www.abilities.ca Enable site.....great one. Check it out.


If you have any questions or comments, please contact:
Karen 'Korky' Kramer
Ocala, FL

korky2k@earthlink.net